Friday, March 31, 2006

More really good news

My view of the world is going to change today!!! The doctors have given the orders that they are going to send me home today!!!!

After 11 days in the hospital of waiting for my body to get back in line, things are finally closer to where they want them to be. I still have a battle ahead of me and have to avoid sick people like the plague. But it is another step closer on the road to recovery!

I can't say that staying here has been that bad at all. When I was at home for the 5 days I wanted to do everything, not really giving myself a lot of time to just rest. I was even thinking about going back to work for a few hours tuesday night, the day I was readmitted. Being here at the hospital has given my body more down time and more of a chance to heal. At the rate I was going I probably could have caused a lot more injury if God didn't shut me down. So who is to say what is good or bad. :-)

Good-bye room W639 you have been a good companion with a very nice bed but my body only likes staying in the same position only so long. Hello apartment comfy Chair, Hammock, my bed here we come!!!

I found something new to do with my time


Take a stack of medicine cups...


And build a 8x8 pyramid with them.
36 cups - everytime they bring me more pills along comes another cup.


Ah, they make such a great work of art don't they.


I found this new pass time at 5:30AM when I couldn't sleep and didn't want to get out of bed yet. But I wasn't able to get a picture, my mom was still sleeping. So I had to recreate it again just for the picture.

I have such a hard life don't I? :-) I am definately not bored, simple things entertain simple minds.

Rejoice with me :-)

Today is day 10 of the Thymoglobulin IV treatment, and they are planning on stopping it after today's treatment. They also have stopped my IV antibiotics so last night I didn't get woken up to the IV pumping machine going off saying that it was done or needed a nurses attention. Again like the last several morning labs my liver levels continue to come down. So as long as I continue this trend and I don't get sick again, my new liver should be on the road to recovery and they won't have to re-list me for another liver transplant, I will get to keep the one I have and somebody else will be able to make use of the new organ.

THANK YOU LORD!!!

Thursday, March 30, 2006

Cool verses I re-read today

Several people have made comments about how strong I have been going through this treatment. Looking back I really have been through quite a bit but the amazing thing is that it really doesn't feel like it is as big a deal as it truly is. I think a lot of that has been God's strength and promises pulling me through. I really can't take credit for any of the progress I have made, other then to say that I am walking by faith one day at a time and trusting that God's plan for my life is far better then anything I can come up with on my own. Hold on tight and enjoy the ride, and watch the power of prayer work and the body of Christ move.

(James 1:2-5)

2 Consider it pure joy, my brothers, whenever you face trials of many kinds,
3 because you know that the testing of your faith develops perseverance.
4 Perseverance must finish its work so that you may be mature and complete, not lacking anything.
5 If any of you lacks wisdom, he should ask God, who gives generously to all without finding fault, and it will be given to him.

(Romans 5:3, 4)
3 Not only so, but we also rejoice in our sufferings, because we know that suffering produces perseverance;
4 perseverance, character; and character, hope.

That is what I see this extended hospital stay is a test of patience and that if I give up now, I am missing out on the full miracle. Also the end of this desert is coming onto the horizon and if I stop now I will still be in the desert and I am going to have to finish crossing it at some point.

(James 1:17-22)
17 Every good and perfect gift is from above, coming down from the Father of the heavenly lights, who does not change like shifting shadows.
18 He chose to give us birth through the word of truth, that we might be a kind of firstfruits of all he created.
19 My dear brothers, take note of this: Everyone should be quick to listen, slow to speak and slow to become angry,
20 for man’s anger does not bring about the righteous life that God desires.
21 Therefore, get rid of all moral filth and the evil that is so prevalent, and humbly accept the word planted in you, which can save you.
22 Do not merely listen to the word, and so deceive yourselves. Do what it says.

I can't help but think that in the hospital with me are so many needy people and the nurses are always running from one room to the next. So I wonder what witnessing effect that I am having on them, a lot of them know now that I am a Christian and that I have been in here for 10 days. I hope and pray that they are seeing God in me, and that by not getting angry or grouchy or rude but very easy going if they are seeing anything unique in me. "Preach the gospel at all times. If necessary use words"

(James 5:7-11)
7 Be patient, then, brothers, until the Lord’s coming. See how the farmer waits for the land to yield its valuable crop and how patient he is for the autumn and spring rains.
8 You too, be patient and stand firm, because the Lord’s coming is near.
9 Don’t grumble against each other, brothers, or you will be judged. The Judge is standing at the door!
10 Brothers, as an example of patience in the face of suffering, take the prophets who spoke in the name of the Lord.
11 As you know, we consider blessed those who have persevered. You have heard of Job’s perseverance and have seen what the Lord finally brought about. The Lord is full of compassion and mercy.

This entire process leading up to transplant going through the transplant battling rejection, waiting for my body to get back in line, has been quite a year. But just like I couldn't predict when things were actually going to move, I did know that things were moving and that the ball would finally hit the fan. In the same way we don't know exactly when Christ is coming back but we have the promise that he is, and at just the right time! Yeah God!!!!

(Romans 8:24-28)
24 For in this hope we were saved. But hope that is seen is no hope at all. Who hopes for what he already has?
25 But if we hope for what we do not yet have, we wait for it patiently.
26 In the same way, the Spirit helps us in our weakness. We do not know what we ought to pray for, but the Spirit himself intercedes for us with groans that words cannot express.
27 And he who searches our hearts knows the mind of the Spirit, because the Spirit intercedes for the saints in accordance with God’s will.
28 And we know that in all things God works for the good of those who love him, who have been called according to his purpose.

Trying to be patient is probably one of the hardest things we have to learn. This verse brings me comfort that even when I don't know what I am doing or what to pray for the Spirit is working on our behave, and that in ALL things God works! Not just when you think it is the good things but he uses our weakness to bring Glory to HIMSELF!!! "It is not about you!" -Purpose Driven Life It is all about God for His pleasure.


(Hebrews 12:1)
1 Therefore, since we are surrounded by such a great cloud of witnesses, let us throw off everything that hinders and the sin that so easily entangles, and let us run with perseverance the race marked out for us.

Satan is a PUNK! Yeah GOD has the victory!!!

Yeah something is working :-)

Just met with one of the doctors again, they are impressed with the progress we have made in the last 4 days. My liver levels are still coming down. They said 4 days ago one of my values was well over 1000 and now it is down to 70, which is still high but that is the direction that they are wanting to see my levels go, and all of the ones they are following closely are doing the same thing. I am not out of the red zone yet but I am out of the inferred red zone. And my temperature hasn't gone back through the roof. The doctors can't exactly say why it is turning, but I can say prayer works, and I am part of a miracle far bigger then me. :-)

So that is what sleep is

I actually last night got 4 hours of sleep between getting up. That is a record for me, normally it has been ever 2 hours or so something wakes me up. But last night I got a lot more. I guess that is a really good thing that my body is needing. So far this morning is doing good. It is nice to not have the staples in my belly anymore I feel like I have a little more freedom not much but a little. Last night when I went for my walk, I was ready to blow this joint so for the first time in 9 days I actually walked off the 6 floor and road the elevator to the lobby. What a new view of the world :-) I also earlier in the day walked to the central elevators, something I have only done one other time since I have been staying in the hospital after transplant. I am finally starting to have a little more energy since I have come back. Oh what a wonderful day it will be when I am back to normal, not that I can really remember what normal is...

Wednesday, March 29, 2006

Something new...

I got a slightly new adventure today. They pulled my staples out about 45 of them, and have now taped me back together. They say that the wound is healing really really well so they were able to pull them out. Oh it feels good not to have a bunch of pin pricks in my gut :-) But it is another small step forward that I can rejoice in something that breaks up my day of sleeping and waiting for my body to work.



I have so much to be thankful for...

This morning I woke up early trying to sleep but just can't, and today it isn't even because of nurses coming in to check on me. I think I slept to much earlier. I am just having a hard time getting comfortable tonight. But being awake I start praying, and that led to me to think of all the things I have to be thankful for, far far to many to list here. But some of the big ones that have come to mind is everybody who is praying for me. Prayer is a powerful thing and I am confident that God is answering every one of your prayers, maybe not in the time frame we want, but part of the Miracle to me is seeing how many people are praying from all over the country/world and I don't even know all of them. I really appreciate that.

(Philippians 4:4-8)
4 Rejoice in the Lord always. I will say it again: Rejoice!
5 Let your gentleness be evident to all. The Lord is near.
6 Do not be anxious about anything, but in everything, by prayer and petition, with thanksgiving, present your requests to God.
7 And the peace of God, which transcends all understanding, will guard your hearts and your minds in Christ Jesus.
8 Finally, brothers, whatever is true, whatever is noble, whatever is right, whatever is pure, whatever is lovely, whatever is admirable--if anything is excellent or praiseworthy--think about such things.

Another pretty cool thing is wireless internet so I can keep people updated on how I am doing :-)

Tuesday, March 28, 2006

The doctors said...

today we saw improvements in my liver levels. All of my levels have dropped, which is a good thing since the last few tests my levels where going up, but they said this was a good drop. :-)

Survived another night

I was up a few more times and couldn't get back to sleep right away so I listened to some music for a while. I feel like I have just a little more energy this morning, not much and I have no idea how long it will last. One day at a time this to will soon pass.

Well I was able to eat a little more then I have the last couple but my appitite is still not back up to what it has been or should be. The nurse said a few of my liver levels have dropped this morning so that could be a good thing! :-) Please Lord!

Monday, March 27, 2006

Yet another biopsy

I am starting to get to know my way around the hospital pretty good even if it is a view from the bed. I had my 3rd liver biopsy today in 20 days, I won't know the results until tomorrow. The way it is looking now if my body doesn't start turning around soon they are going to re-list me on the list and give me another liver. This time I am at a higher priority so I won't have to take as long. I don't really like this option because I incision is healing so well and they are going to be pulling the staples soon.

Lord PLEASE HELP fix me from the inside.

Same old same old

Were has the month of March gone? Oh yeah I spent it in the hospital, getting woke up every few hours for this IV Antibiotics, or taking vitals or just having to go to the bathroom... Yesterday I pretty much slept the morning away and most of the afternoon by evening I did manage to go for 3 short walks before bed. I haven't had much strength to do anything just lay around and try to sleep between interruptions. So last night I think a lot of the extra sleep caught up to me so at 4 this morning I couldn't sleep but didn't want to do anything so I just laid in bed and waited for the next fun to come.

2Co 13:4 For to be sure, he was crucified in weakness, yet he lives by God’s power. Likewise, we are weak in him, yet by God’s power we will live with him to serve you.

Sunday, March 26, 2006

Morning Fun

I am special enough this morning to get another CT scan. They decided to try something different with me and drink a barium contrast drink instead of the Crystal Light that I had before when I had these test. Well because I haven't eaten anything of substance I got one sip down and then my stomach immediately revolted, and I proceed to through it and everything else still left in my stomach back up. Now it is back to the crystal light special drink again and hopefully will do better with it.

They also decided that I needed another IV this morning for this test so lucky me I get poked again. I am really starting to feel like a pin cushion I have lost tracked of how many times I have been poked :-) Think of the stories I will be able to tell my kids in the future about how barbaric medicine was when I...

Saturday, March 25, 2006

Nothing really new

It is amazing how this time in the hospital has just been not very eventful. The last time everyday there was a noticeable change from the previous. This time the last 2 or three days have all just blurred together. I have gone for a few short walks around the floor. But mostly I have just been sleeping. Today I haven't had an appetite today, nothing has sounded good to eat. My gut has just felt in knots and twisting a bit I have had more cheese and dairy lately, So nothing super out of the ordinary. The pick line is working good so they pulled they IV that I had in my arm, and I guess the big highlight was that I got to take a shower without any IV lines attached to my arms :-)

Overall it was a good day Thank you Lord! I just pray that tomorrow I can do more for you then I have done today.

Another good night

Well as good as it can be in a hospital where they keep coming in all night for this and that. Last night I got to sleep most of the night not connected to an IV or monitoring device! :-) And this morning they pulled my IV in my arm that I got early tuesday morning when I checked in to emergency. Another cool thing they installed this PICC line in my right arm and they are able to use it to give IV fluids but they can also use it to draw blood out of. A really good thing for me since my veins have tendency to role a lot when they try to poke them. With this PICC it has been easy for them to get my blood out of me.

Php 4:12 I know what it is to be in need, and I know what it is to have plenty. I have learned the secret of being content in any and every situation, whether well fed or hungry, whether living in plenty or in want.

Jos 24:15 But if serving the LORD seems undesirable to you, then choose for yourselves this day whom you will serve, whether the gods your forefathers served beyond the River, or the gods of the Amorites, in whose land you are living. But as for me and my household, we will serve the LORD.”

Friday, March 24, 2006

Well still here and looks like for a while

They are going to be a lot more cautious with me now since I am still fighting rejection, so it looks like I am going to be spending the weekend again in the hospital and not get to go home early. Today I have just been sleeping all morning taking it very nice and easy it has felt really good I can't say I am getting caught up on sleep just get a few more hours here and there between interruptions. The hope is that my body will stop fighting the liver if it doesn't that means I go back on the transplant list and get to go through surgery again and get another one. :-(

Friday Morning Update

I don't really have to much to report this morning. I had another pretty good night. They gave me this thymoglobuan immuno killer drug spread out over 6 hours while I slept. I got woke up just a few time so other then that I was able to sleep most the night. I haven't heard what my progress is yes lab work and stuff this morning but the last thing I heard was i was heading in the right direction. Maybe that means I will be going home again soon. We will see. But in the mean time I think I am going to try to get another cat nap in before all the doctors and nurses come back in. Mornings are usually pretty full with staff stopping by.

Thursday, March 23, 2006

Thursday update

Well I am doing much better today. I have still been taking it easy and resting a lot but the doctors say the my levels are going in the right direction. So I just get to avoid sick people like the plague, which make a hospital a great place for me to be at :-) It is amazing how good a shower feels to rinse off all the guck and grime even if I have spent most of it laying in bed.

This to will soon pass. And who's to say what is good or bad. It is all going to work out really good in the end. God knows right where I am down to the cellular level.

Another Night in the hospital

I survived another night in the Hospital ( YEAH no late night fever this time.) They started a new does of even more powerful anti immuno drugs and like the first experience with the OK-T3 first hour was the worse, this new treatment did the same thing. I got massive spasms shakes and fever came back for a bit. About an hour later I finally settled down they were able to restart the treatment and I didn't have any more problems. So I got to sleep through the night as good as can be expected in the hospital. They are saying that I will be here for a least 1 or 2 more days watching me and making sure my levels come back down. This morning lab results have shown that my bilirubin score has dropped again and that all my other liver levels are still falling so things are working pretty good if my stupid immuno-system will stop fighting me.

Wednesday, March 22, 2006

Rejection

I though I was doing really good, on the road to recovery, and now the results from the liver biopsy that was taken yesterday came back. Unfortunately it is showing signs of rejection. So now they are going to be pumping me full of more steroids and more powerful immuno-suppressants Not looking forward to that at all. :-(

Lord I don't know why you are taking me down this coarse but I just pray that you can give me the strength to make it through. Because it is all about you and not me.

Hot tomalley

It is amazing how the body uses fevers to fight. I keep going up and down and now I am back to 103.28. They say they want me to have no fever or less then 101.5. But I am up to 103.3 that is a little toasty...

God is good.

A friend sent me this in an email. I thought it was a pretty good reminder so I will share it with all of you.

"Stop telling God how big your storm is. Instead, tell the storm how big your God is. " We serve a big God! :-)

Wednesday Early Update

I thought I was getting a lot better. I was hopeful that I might be going home today. But once again they come in to take my vitals and I have another fever of 102.9 :-( now there wondering if I am developing a pocket of puss inside where the drain was. If it is not one thing we me it is another. I am really starting to get tired of all of this drama, I am good, I am bad, I am good,I am bad.

Lord, please give me the strength to make it through another day of tests... I can't do it on my own I need you in a supernatural to strengthen my body.

(Psalms 18:1-6)
1 For the director of music. Of David the servant of the LORD. He sang to the LORD the words of this song when the LORD delivered him from the hand of all his enemies and from the hand of Saul. He said: I love you, O LORD, my strength.
2 The LORD is my rock, my fortress and my deliverer; my God is my rock, in whom I take refuge. He is my shield and the horn of my salvation, my stronghold.
3 I call to the LORD, who is worthy of praise, and I am saved from my enemies.
4 The cords of death entangled me; the torrents of destruction overwhelmed me.
5 The cords of the grave coiled around me; the snares of death confronted me.
6 In my distress I called to the LORD; I cried to my God for help. From his temple he heard my voice; my cry came before him, into his ears.

(Psalms 27:1-14)
1 Of David. The LORD is my light and my salvation--whom shall I fear? The LORD is the stronghold of my life--of whom shall I be afraid?
2 When evil men advance against me to devour my flesh, when my enemies and my foes attack me, they will stumble and fall.
3 Though an army besiege me, my heart will not fear; though war break out against me, even then will I be confident.
4 One thing I ask of the LORD, this is what I seek: that I may dwell in the house of the LORD all the days of my life, to gaze upon the beauty of the LORD and to seek him in his temple.
5 For in the day of trouble he will keep me safe in his dwelling; he will hide me in the shelter of his tabernacle and set me high upon a rock.
6 Then my head will be exalted above the enemies who surround me; at his tabernacle will I sacrifice with shouts of joy; I will sing and make music to the LORD.
7 Hear my voice when I call, O LORD; be merciful to me and answer me.
8 My heart says of you, "Seek his face!" Your face, LORD, I will seek.
9 Do not hide your face from me, do not turn your servant away in anger; you have been my helper. Do not reject me or forsake me, O God my Saviour.
10 Though my father and mother forsake me, the LORD will receive me.
11 Teach me your way, O LORD; lead me in a straight path because of my oppressors.
12 Do not hand me over to the desire of my foes, for false witnesses rise up against me, breathing out violence.
13 I am still confident of this: I will see the goodness of the LORD in the land of the living.
14 Wait for the LORD; be strong and take heart and wait for the LORD.

Tuesday, March 21, 2006

Tuesday

They pulled the drain today, which I am Glad to have out but it sure didn't feel good coming out. But as soon as they did I started feeling a little better. Even though I haven't done anything all day I am tired so I am thinking about calling it a night early at least until the nurses come in.

The adventure continues

Last night I developed a fever of 103.7. It is weird to be that hot. So at 12:30 in the morning my mom took me to emergency and checked me back into the hospital. Because of the transplant everyone was saying it is a good thing that I came in. I am feeling a lot better now, they pulled the last drain that I had from the surgery. Plus they have been pumping me full of antibodies. I have also gotten to have more test done, a CT scan, Ultrasound, liver biopsy, chest x-ray. They aren't seeing anything that is an obvious sign of infection or sickness, but they are wanting to make sure and not miss anything.

Hopefully they won't keep me very long since the fever has broke, and that this isn't another form of rejection.

(Mark 12:30)
30 Love the Lord your God with all your heart and with all your soul and with all your mind and with all your strength.’

Monday Busy day

I don't know my limits yet. :-) They say that walking is a good thing for me so we did a bunch of errands going from store to store to store. I am feeling really pretty good. But I may have once again over extended myself.

Monday, March 20, 2006

We have internet now...

I am back on the internet. Now I can be making more updates and changes to the site.

Sunday

Well it is official my mom remembers why she doesn't miss Utah. It is the "Greatest snow on earth" for falling in. This morning once again it snowed, but instead of being the nice powder light snow this is the the super heavy wet slushy snow that makes everything really slippery. So as we were walking out of the hospital today she was walking down the grass with just a slight slope and her foot went out and down she went. Thankfully she didn't hit her head or anything but she did hit her shoulder on the sidewalk. So pray that nothing develops from this slip.

Yeah today is my last day for of my nasty treatment. Now hopefully I can really start the recovery process and be getting back up to speed. I don't know what God has in store for me but it is kinda exciting to know that He has something better just around the next bend.

While we have been resting, and waiting in the doctor offices, we have been watching pieces of movies spread out over multiple days. :-) The movie that we watched today was "Must Love Dogs." It had been my first time seeing it, and I find that afterwards I just keep thinking about how God's view of dating is so different then the worlds view. The world is shallow and empty selfishly gratifying desires with anyone who can come along. God's view of dating, is not what "selfish I" can get, but how can I die to self and what I can give to make somebody else happier. There is a struggle because we want what we want when we want it, but God's time is best. It is funny how waiting for this transplant has grown in me more patience and faith that can be applied to other areas of my life. Like dating. I know that God has me here for a purpose to glorify him, and that he has a perfect helpmate picked out for me. Why do I need to stress and worry about trying to find that person myself? If I am running full steam for God, and they are running full steam for God. I just have to wait and God will bring us together when we are both ready for each other. So my prayer for my future spouse is that God will be protecting her and growing her into a Proverbs 31 woman, and that she will be waiting for God's best, not trying to speed up the clock, doing things on her own.

The doctors said when they listed me on the list for transplant to be ready at anytime. The call is going to come at the most inopportune time. It will interrupt, and disrupt everything. For the first few weeks I was stressing and worrying about how it will interrupt, but then I had an attitude shift. It isn't about me... It is all about God. I don't want just the next liver that comes available, I want the one that God has picked. I want the one that is a perfect fit that will make the surgery super smooth with no complications. And so when the call comes it will be at the perfect time.

Saturday

This morning I woke up with a song of praise just on my lips I just wanted to glorify God and give him all the praise for what he has given me the strength to make if through. We were able to get several little projects done during the day, and we just took things nice and easy walking trying to conserve some strength. But I had the overwhelming desire all day to go Church Saturday Night. A lot of people said I shouldn't go, but I felt like I really wanted to be there to worship God. So decided to show up a little late after church had started and leave before it was totally over, and surprise a few people. It felt so good, I am glad I went. They showed an italy video, that I have been wanting to see plus the message was what I needed to hear, "Die to Self". God is so GOOD!

Time for Thanks

I would like to say thank you to all of the staff, nurses and doctors that have been taking care of me while I was in the hospital. It was an enjoyable fun stay considering the circumstances.

I also want to say thank you to the many friends and family that stopped by to express their love, support, and prayers. It is crazy to think that this part of my adventure is over. I had 33 people stop by, and many of them came multiple times, and I know that there were more still wanting to come. It is overwhelming the number of people God has used to touch my life the last little bit as well as use me to bless theirs. Prayer really works.

Saturday, March 18, 2006

Friday March 17

Much slower much better. After the morning hospital run, I was able to come back and get some more sleep. Some long time family friends of my parents came by and visited for just a few minutes, and took my mom out to lunch while I continued to sleep. Then I took on a few light cleanup/put things away, like computer cords and stuff. Then some long time friends of mine came by while I just took it nice and easy moving slow, and without TO much pain and discomfort.

Life is a whole lot less eventful and exciting at home then it is at the hospital when tons of people are always stopping by poking you for this info or that. I feel myself getting stronger and stronger as my body heals.

The Body is just amazing and as I see its inner workings, I see it as one more testament to the fact that we are created by a Creator we didn't happen by chance.

Psalms 139:1
O LORD, you have searched me and you know me.
2 You know when I sit and when I rise; you perceive my thoughts from afar.
3 You discern my going out and my lying down; you are familiar with all my ways.
4 Before a word is on my tongue you know it completely, O LORD.
5 You hem me in--behind and before; you have laid your hand upon me.
6 Such knowledge is too wonderful for me, too lofty for me to attain.
...
13 For you created my inmost being; you knit me together in my mother’s womb.
14 I praise you because I am fearfully and wonderfully made; your works are wonderful, I know that full well.
15 My frame was not hidden from you when I was made in the secret place. When I was woven together in the depths of the earth,
16 your eyes saw my unformed body. All the days ordained for me were written in your book before one of them came to be.
17 How precious to me are your thoughts, O God! How vast is the sum of them!
18 Were I to count them, they would outnumber the grains of sand. When I awake, I am still with you.
...
23 Search me, O God, and know my heart; test me and know my anxious thoughts.
24* See if there is any offensive way in me, and lead me in the way everlasting.

Thursday evening Update

Wow what a day 1st full day out of the hospital. And now I am exhausted, I think I have learned some limits.

Today was the first day that I had to go get my morning blood work so the day started early, then to the OK-T3 treatment, which we found that we weren't told that we needed to take some other drugs 1 hour before treatment. The stuff really takes my energy, and makes me feel drained like when you are just starting to get a cold. This to will soon pass, it is almost over.

So then my mom wanted to go to Walmart (They have the electric carts which are great) What freedom but oh how quickly my energy goes away. I think I might be over doing it (again)... I am learning where my limits are, and where God is giving me a little more grace. tomorrow I am going to go a lot slower... This was the most walking I have done, I just move really slow. By 7:00 o'clock I was dead tired but it was to the point were you can't sleep :-(

Thursday, March 16, 2006

:-( Bummer I lost a message...

I had typed an update reporting my status and when I went to submit it this morning it crashed on me so I lost my really cool message. :-(

So in a nut shell I am doing really pretty good. I made it home, I got a few more hours of sleep at home last night but I still woke up a lot. I feel easily tired if I walk to much, but I press on.

13 Brethren, I count not myself yet to have laid hold: but one thing I do, forgetting the things which are behind, and stretching forward to the things which are before,
14 I press on toward the goal unto the prize of the high calling of God in Christ Jesus.
(Philippians 3:13, 14)

1 A psalm. For giving thanks. Shout for joy to the LORD, all the earth.
2 Worship the LORD with gladness; come before him with joyful songs.
3 Know that the LORD is God. It is he who made us, and we are his; we are his people, the sheep of his pasture.
4 Enter his gates with thanksgiving and his courts with praise; give thanks to him and praise his name.
5 For the LORD is good and his love endures for ever; his faithfulness continues through all generations.
(Psalms 100:1-5)

For God's Glory! :-)

So I can make daily updates...

If I bring my laptop with to the hospital when I get blood drawn I can update my site, since I am going to be doing that a bunch.

My Mom also wants to send out her Love and thanks for all the people that are praying for us and wants to let all her friends know:
"I am praying for you also! I miss you! Wish I could be there for the Towers GREEN tasting party! :-) Looking forward to working on my own computer and sending messages to you! Until then... P4U!!

After 8 days, this is it I am going home :-)

But unfortunately I won't have internet at home for a bit so the blog won't be updated for a few days but it should be coming first part of next week.

Thanks so much for your prayers it has been needed and appreciated. I am glad you have been involved in my life an witness to Gods Miracle in our lives.

Wed March 15 Evening update

So I have been sent home Now what...
Well it look like I am going to be developing a new sleeping pattern :-) no more late night 2AM parties I get to be at the hospital bright and early for the next week or so for lab work. Plus I am going to need to be given more treatments till sunday of the nasty blow away your immune system.

The car ride home was interesting. I thought my car road pretty smooth on the road and had plenty of space for me to lay out in, but that was before... Now riding in it with a gut that is stapled together and my mom driving, so I have no control over what bumps we hit it takes on a whole new riding experience. Only one other time have I been a passenger in the car, and that was shortly after I got it I let my super best friend Ryan drive so I could feel what that side felt like :-) It was also a unique experience because I was riding home with the hospital pants still on. I wasn't thinking all that clear when I made my hospital bag, I packed a lot of stuff extra that I wasn't ever going to need instead of just 1 really big shirt I packed 3, instead of 1 really big pair of pants I pack 3, I packed more like I was going camping for a weekend then I just need cloths to go home in. :-) So I asked my mom if she could take it home and empty out all the extra stuff that I have in it so it didn't weigh a ton. Well, I love you mom, She did but not really knowing what I wear size wise she packed based on what looked nice. But also took out things that I did need like shoes, coat. It is a nice day out today he doesn't need a coat. She didn't even pack herself a coat coming from Washington, not that she would wear it if she packed it anyway. She wasn't expecting to come to Utah and have it Snow, she has been away from the Utah license plates to long "Greatest Snow on Earth"... And then the morning Sunday my Grandfather is leaving it Snows, and then the morning I leave it snows

Anyway so I also wasn't feeling so good because of the OK-T3 drug they had given me about 5 hours earlier. But we made it home and I went straight to the Bathroom. They gave me dinner before I left, and it didn't settle very well with me. I have been learning over the last few meals what works and what doesn't and I am coming to the conclusion that after having a week long fast, and a new liver hasn't changed what my stomach and intestines like. :-) So my new diet is going to be the same diet I had before I went in for transplant. It likes veggies, fruit, Salmon, Chicken, and Turkey, eggs, bread, pasta. And AVOID dairy Milk/pudding BAD very bad. Greasy food, hamburger, fries, bacon, large quantities of heavy red meat. And soda pop, no more Cherry Coke for Micah :-( (That is what brought me up to the level to be transplanted, camping 4 out of 6 weekends last summer eating hamburger, Soda Pop, grease...)

The really nice thing is that my pain level has dropped to about 3 or 4 (my high in the hospital was 9 but I was averaging a 5 or 6) so now I am taking only 1 pain pill ever 4+ hours instead of 2 or 3 pills every 3 hours.

So now:
13 Brethren, I count not myself yet to have laid hold: but one thing I do, forgetting the things which are behind, and stretching forward to the things which are before,
14 I press on toward the goal unto the prize of the high calling of God in Christ Jesus.
(Philippians 3:13, 14)

(Psalms 100:1-5)

1 A psalm. For giving thanks. Shout for joy to the LORD, all the earth.
2 Worship the LORD with gladness; come before him with joyful songs.
3 Know that the LORD is God. It is he who made us, and we are his; we are his people, the sheep of his pasture.
4 Enter his gates with thanksgiving and his courts with praise; give thanks to him and praise his name.
5 For the LORD is good and his love endures for ever; his faithfulness continues through all generations.

The hardest part of this whole life changing experience is still ahead. But I will sing praise.

Wednesday, March 15, 2006

After 8 days, this is it I am going home :-)

But unfortunately I won't have internet at home for a bit so the blog won't be updated for a few days but it should be coming first part of next week.

Thanks so much for your prayers it has been needed and appreciated. I am glad you have been involved in my life an witness to Gods Miracle in our lives.

Wow I had a pretty good night

I am amazed at how I did last night. I got up and went for a 20 minute walk this morning. I have been feeling very week and tired all morning but overall the pain is working its way down. I don't feel as bloated in the gut. This is a cool thing.

Well the word is out I am going to be discharged they gave me another dose of the nasty OK-T3 and now the want to monitor me to make sure my brain doesn't fry :-) So it look now that I will be leaving Tonight at 5:30-6:00 :-) God is so so so good at giving me the strength I need.

Wed (early) Morning update

Word on the Floor this morning is that they are sending home a liver transplant patient today... I will fully believe it when I see it. :-) I don't think the shock of it has fully set in of what that mean yet. They were saying it would be several days waiting for the anti rejection stuff got squared out. I want to see how I do sleeping unattached...

I believe I God has healed me from the inside out and that by his strength this could be a reality. God is doing something good in me.

Tuesday, March 14, 2006

Evening Update

Today has been a busy day for people stopping by and praying with me. It was really good I have feeling a lot better my system is getting running. My mom even says there is a sparkle in my eyes today.

They have upgraded me to full liquid status, so now all the other juices are included, and I can also look forward to pudding, yogurt, milk, which all of which are dairy product :-P I tried some chocolate milk, oh boy, oh boy, I remember why I don't like that even on a good day, my stomach started ripping and spinning. :-)

So things are looking much better. Thank you All for you prayers! Power of prayer really works. God continues to amaze me everyday.

Morning Update Tuesday March 14

They gave me last night a bigger immunosuppressant (ITCP03???) drug which 45 minutes into becomes really fun with feever/Cills/shaking. It was fun...

My blood counts are all down except Biliruben is staying high so they are going to watch me closely.

The Doctors are confident that things will go well treating with the drugs.
I am confident that things will go well because the creator of the universe has His plans for me.

Ps 20:7 Some trust in chariots and some in horses, but we trust in the name of the LORD our God.

Another chance for God to be Glorified

Result are back from the Liver Biopsy, My body is being a punk and not wanting to share real-estate with somebody who is really good for me and is in my best interest to get along with.

My body is rejecting the new liver. :-( I am still at civil war.

The have up my immunosuppressant drugs. To fight back and cause them to play nice.

Lord thank you that all of this will work out for for your glory and that all my friends and family will be part of the Miracle.

Today has been the day of sleep

Well the doctors are concerned that all of my scores are getting better but the bilirubin. So they keep ordering more test for me to take. This afternoon test was by far my all time favorite :-) I had a hida scan which I lie under a geiger counter thing in nuclear medicine for an hour which was looking at my liver. So the nice thing was that I was able to fall asleep, and I didn't have to focus on being perfectly still. Best sleep I have had so far in a while.

The results have come back saying that I don't have a bile leek so that is not the problem.

Monday, March 13, 2006

That was an adventure :-)

They took me down to Ultra sound and when I got there there was someone in the room who was almost done. The left me in the hall waiting which was fine. Then they moved me into the room and starting to get me setup and someone else came in don't start that ultrasound yet they need it in OR. Mr Coleman you are going to have to wait. OK no big deal I will just lay here and sleep. So two hours later the ultrasound machine comes back and they do a 15 minute ultrasound and a liver biopsy :-). But it worked out quite well because I was able to rest in a different room and have new noises keep waking me up.

We are still waiting now for the results of the test...

Well I guess I am not out of the Red yet

Doctors are still a little concerned that I might have a bile leak so I guess my day is going to get filled with more test.

It brings so much peace of know that Prince of Peace, and Ultimate Physician has his hand on my life. :-)

And besides it is not about me. All of this is for His Glory. :-)

My view of the world

My lovely home way from home. Just missing the microwave and frig and kitchen sink.

And How about a bed that can move in just about every direction. :-)


And the place even comes with a view of the backside of the capital.

How is this for a contrast


Last February 2005 I was in the hospital for pancreatitis and of course I had to take a picture.



March 2006 6 days after transplant.

What a miracle to be apart of. Thank you Lord!

Doing much better


I have seen every end of the spectrum today. I was super super week and ended the day able to walk 4 laps around the floor with Steele Kim and Joey.

The CT scan that they took came back with nothing on it that would make them send me back to the Operating room. :-) Thank you Lord!!!

I have been able to sleep a bunch.

Sunday, March 12, 2006

Sunday March 12

Well today started out to be a really good day. The pain meds showed up on time. The blood dude didn't have any problem getting my stuff. I slept pretty good all night considering that I kept getting woke up all the time...

God has a real sense of humor. The nurse that I got today was the same nurse that I had yesterday. So I have the opportunity to shine more for God.

I got up and did a 20 minute walk before before breakfast. I was stiff and sore but still felt good.

I laid back down and I felt a fever coming on. Everything turned super hot.
The nurse came in and took my temperature and said I was at 38.3 but didn't see it as that big of a deal. I didn't agree and so started calling the transplant people to find out if we were missing something. That got more people involved looking at me. They were going to give me an ultra sound and now they decided to give me a CT scan to make sure I don't have a bile leak inside. So I get to drink Gastrografin 30cc off raspberry crystal light in an hour and a half.

The sad thing is they made this decision right as lunch arrived so they said I can't eat or drink anything. I was really looking forward to the chicken broth it was sitting in my room and then they pulled it away :-(

So today my pain has been a lot higher. I have had a fever that I got really really really week and didn't want to move at all. It finally broke just before lunch but my got just wasn't right.

So it has been so far quite an up and down day. But God is still in control and even this is for His Glory!!!!!

Saturday March 11

A very busy afternoon and full of lots of highlights :-)

Went for a 20 minute walk before lunch and 30 minute walk around the hospital before dinner. God has been amazing everyone who has seen me, and giving me the strength so I can continue to give him praise for what is happing.

My central line was remove, and I was given an IV in the forearm. They say my battle wound is healing well. Liquid diet is going down well.

Michael Anderson stopped by and I got a haircut.

Things moving inside.

Pain very manageable, staying under control.

Saturday, March 11, 2006

A lot of Extra patience needed today

I have had a lot of trouble with one of my nurses today. She is an older women, but I think we got off on the wrong step. So now it makes for interesting drama in the hospital. Everytime I got to deal with nurse T. it took extra time.

It started this morning with calling for pain meds and she didn't come, call again, call again for pain killer, for an hour later. Then finally get the attention of the doctor and have them get the nurse moving. With me still in pain she come with capsules when the doctor ordered IV pain meds, but she didn't bring straw :-( I am laying flat on my back not able to move, I ask her where is the IV pain killer? She says here is your medicine I will go get a straw. She comes back and slowly opens the straw (maybe she was going a little faster but from the point of view of the person in pain she wasn't making it go away fast enough) Then she pulls out the IV pain meds and injects them in my IV. (Why didn't she do that first??? That is what I really wanted)

Finally after settling down talk to transplant doctors and they are concerned that I haven't had blood work done yet I tell them about the issue blood dudes at 6:00AM had with me and they tried again when I was in pain. Nurse T. calls lab to have them come back again, and tells me to page when get poked so she can give me morning drugs. 10 minutes later get poked and page nurse. 15 minutes later, no nurse or drugs and the IV pump complains. I decide that I am not waiting so I go track her down. Find her at the nurses desk and ask if she got the page 10 minutes ago, she with a very confused look says yes but she was waiting for the lab to come and poke me... I ask her for the drugs now and says she will bring them. I start waking back to room slowly because that is the only real speed I have. She comes up saying she is going to race me to my room, I try asking her about what I can drink with the drugs do I get juice, but she keeps on going. So when i get there I ask her and she says yes I can have apple, cranberry, or grape. I ask for grape. Then a couple of minutes later she comes back asking what type of juice did I want? So about 10 minutes later I am able to take my morning pills.

Later, Aide M. is in room changing the bed sheets and getting sponge bath ready, when the IV pump goes off needs reset. Aide pages Nurse T. while she finished in the room changing bed. Nurse T says ok be there in a bit. Aide M. finished getting water ready for bath. pump still beeping. If nurses is coming decide I will wait for pump to be changed. Aide M. said that the water will start to get cold and I decide to take bath leaving pump just outside of the door so it cam be worked on. Take bath and finish getting ready, pump still going off. Aide comes back to check on me 15 minutes later comments about the pump I tell her that it hasn't been fixed yet. She goes to try to find nurse. Comes back with someone else Nurse C they hit the reset and the pump now wont work because it hasn't been going for almost 45 minutes and there is tension. They have to go and get a flush but come right back. and flush the line, then the pump works. A lot of extra work because Nurse T didn't show up :-(

Then this afternoon I get a new IV in my wrist because they were going to take the central line out. The IV went in no problem she had someone else do it and said she was going to come back and switch things off of the central line. I was wanting to go for a walk, but she didn't come back so I went to track her down. So after a little convincing saying I don't like seeing blood in my IV and wanted saline in it before I walked she came and did it, but she had to get a connector first, came back then found needed another connector went and came back.

I can't say it was all bad dealing with her she did show up on time to give me pain meds the rest of the day. :-)

So as I am typing this I have to laugh at myself a little I prayed earlier today that God would help me to see her through his eyes and that I could find a way to witness to her and that she could see something different in me then her other patients, God to give me the patience to work with her. So how does God answer prayers for patience? He put his children in places where they have to be patient. Thank you Lord for answering prayer in a very tangible way. I have never been alone since I got here :-) Yeah JESUS!

Another amazing thing, that happened they ordered to take out my Central line IV. I don't mine it wasn't working anyway. Well Nurse T got to come do it Michael Anderson and showed up to give me a hiarcut at the same time. She had to hold pressure on the hole for 10 minutes. So the entire time I was telling about all the Miracles God was doing on my life. God ROCKS!!!

Tired of those Hiccups that won't go away?

FYI -Hiccups REALLY hurt when your abdominal muscles have been cut in two.

But there is hope I just learned an old wives tale. The nurse recommended that I take a sugar packet (not that imitation stuff for people on a sugar free diet :-) real sugar and pour it on my tongue using a medicine cup, Then let it dissolve breathing slowly or holding breath.

LIQUIDS!

I have been upgraded. Apple cider tastes so so wonderful :-)

I got Apple Cider, cranberry juice with potassium which makes the juice taste really bad :-P and peach jello. For breakfast.

Then for lunch I got 6 oz of the best Chicken broth and if that wasn't enough I got orange Italian ice and cranberry juice.

So we are doing really good now for someone who has been cut in half.

Pain drugs are a wonderful thing!!!

Good idea taking pain drugs every 3 hours to manage pain. Bad Idea have pain drugs at 3:40AM so next drugs are due at 6:40 when nurses go on shift change. :-( I asked for them at 6:00 but once again I guess I don't squeak enough, so I didn't get the grease this morning. :-) After paging every 10 minutes and having pain up to about 9 on the scale, with me convulsing on bed in pain and having the transplant doctor order the nurse to come see me I am feeling much better 2 hours later.

FYI- Crying and convolutions really hurt when you try not to use the abdomen muscles.

Another thing that I have learned about the transplant teem is they don't like it when blood draws don't happen. And I agree with them. That is becoming the thing I dislike most and the good news is I get to have it 3 times a week before 7 am for the next month or so :-) I have a central line in to make getting my morning blood easy, they are suppose to just be able to get it right out of me. Well so far it only worked in the ICU. Yesterday morning I almost passed out on them, they were digging for my blood. And Micah's body really doesn't like it when people do that. So this morning they came tried again, and instead of continuing to dig they decided to let the blood tech pull it from my arm. 2 pokes and 4 attempts later she decided to let one of the more skilled people come and grab my blood. It is funny that the blood dudes don't like taking blood out of someone in a lot of pain who is shaking. So now I am still waiting for them to come get my blood levels so they can give me the anti rejection stuff and make my doctor friends happy. And the sooner they are happy the sooner I get to be on a liquid diet which will make me happy, which will hopefully make the blood dudes happy :-)

Oh I am feeling so much better!!!. God is so so so good to me and takes care of me. I have nothing to fear, because it is not about me it is all about Him and for His glory that I am where I am, which is very relaxing knowing that I can just hang on to Him hanging on to me and enjoy the ride.

Yeah I get to use my taste buds :-)

My blood sugar got low again 59 and now that I have passed some gas I get to have have grape juice to bring my sugar level back up!!! Oh it is amazing how good that first sip is when I haven't had anything but ice chips since monday, (2:30 pm 2 - Arby fish sandwiches, and 2 oreo cookies at EMM before I got the call.)

Friday, March 10, 2006

Yeah my system is rebooting


My internal organs are starting up again and things are moving. I just passed another milestone today. My intestines are starting back up so I will be able to move off of my ice chip diet to liquids soon. I am looking forward to broth :-)

I am amazed at how I am overall feeling. I am able to move around pretty much on my own. SLOW but I can get in and out of bed on my own walk to bathroom, walk up and down the hall. I don't know how this is humanly possible all the nurses are are amazed at my progress. A lot of transplant people that they see are needing a lot more help 3 days after surgery. So I want to thank everyone for their prayers. I can see God's hand of healing on me. It is such a miracle thank you for being part of it.
I had another fun adventure today. I got to go on a tour of the hospital and see my goober liver. Very very interesting. And of course I got to take my camera and get pictures of it :-) It was really big.

I am doing pretty good, still on just an Ice chip diet. And going for walks. God continues to give me the strength I need and I will praise him.
Still hanging in there, had an exciting morning when the nurse came to draw my blood this morning she was having problems with it. So I started to pass out on her, she didn't like it to much, I think I scared her a little bit. :-) I was a bit scared to, I got super week and tired and was not wanting to move at all. I have had really good service from the nurses and aides, but this morning they weren't up to par with their coworkers. I think they forgot about me for a little bit. But God doesn't! Another part of the miracle at work is the fact that I can have such a peace, that is beyond my own understanding.

I have been able to get more sleep today and feeling better. I just have a pretty week stomach when it comes to stuff poking and prodding in me. So we will just go back to sleep :-)

Friday March 10

Where has this week gone it is already friday wow... Time is flying. I am doing pretty good I have now upgraded to walks on my own around the floor. I just got back from about 5 minute walk and 40 minute being upright. Wanted to walk farther but I was starting to hurt more. talking to the nurse the last pain medicine I had was at 9 o'clock so I was well pass due and ready to get some. The next thing they are waiting for me to do is start passing gas. I have been burping and feeling movement in my abdomen but not there yet.

God continues to amaze me how he is strengthening my body. And that I can just sit back hold on tight and enjoy the ride that he is taking me on.

Another really cool thing about yesterday I had student nurse from BYU taking care of me and I was her only assigned patient so able to talk to her most of the day about how big and great my God was and how I could see Him at work in my life and how I want to continue to praise Him and thank Him for what he is doing in my. I also got to talk a lot about the Rock church that I go to. I hope and pray that I can continue to be a witness for Christ and that seeds can be planted and that God can give me the words to say, that he wants these nurses and aides to hear. Pray for Holly....


Any one want to take bets/predictions on when I will be discharged?

Thursday, March 09, 2006

Thursday March 9th

Really really good day. I am becoming less biconical and more free They pulled 2 of the 3 jp drains that I had attached to my belly after surgery. Along with my wrist IV. I have been able to get up and move around I went for a 15 minute walk around the floor plus several short walks to.

My skin color and itchiness is doing a lot better, Yeah!!!!

Thank you for your prayers!

Php 1:6* being confident of this, that he who began a good work in me (you) will carry it on to completion until the day of Christ Jesus.

Wednesday March 8

Moved out of ICU to the main floor, so I was able to get some more sleep. Walking a little and sitting for about an hour up.

Slept a lot went to bed at 8 and woke up every 2 hours. It was just a good slow recovery day...

Liver transplant has finally Arived

Normally I don't do much blogging but as a way of letting people know where I am at I thought I would give it a try.

November 2005 Listed active on the Liver transplant list type A blood. It is a weird place to be I am standing on the edge of a miracle. If God touches me and heals me so I don't need transplant that would be a Miracle. If He takes me through the transplant that to will be a Miracle.

Well now after several months of God teaching me patience and that it is his time not mine my Miracle finally is here.

Monday March 5th 2006 (Happy birthday Joey)
8:45 got the call to be on alert don't eat or drink anything.
It was an answer to prayer I was with my church family at Every Man's Monday, Ironic part is I had just talked to Steve McInroy about going on the Colorado road trip saying that I want to go, and since nothing was happing with the transplant I thought I would be able to go. But God and his sense of humor said tonight is the night.

9:30 hanging out with friends for Joeys Birthday when the call came saying that they wanted me to come in. Wow after a year long process to get to this point the day was finally here now it is my turn to Hold on tight to God and enjoy the ride.

10:30 Checked into room 648 :-) Yeah God is watching out for me, How fun is that. And visited with friends.

Tuesday Morning 8 am went in to surgery 5 1/2 hours later came out. Doctors said I did wonderful I didn't need a blood transfusion :-) I was waking up enough that they pulled the breathing tubes before going to ICU.

Tuesday night didn't sleep a whole lot, kept getting bugged by ICU nurses. Listened to Anything CD and Captured by Grace all night, Thanks Steele, Kim and band for being in the hospital with me all night :-)



Spread the Word - we serve an AWSOME God

Spread the Word - we serve an AWSOME God!!!

Prayer really really works! Thank you for all your prayers. The surgery has been one miracle after another after another.

Praise Report:
-Liver was a good match
-Surgery was done 5 1/2 hours average is 8-12 hours
-I didn't need a blood transfusion during surgery
-The breathing tube apparatus usually comes out in the ICU, mine came out in the Operating Room
-Spent the night in ICU all of my levels are doing good and the transfered me out of ICU to the main floor

Prayer request:
-Continue healling and body accepts the new liver
-Drugs work well
-Doctors see what they need to
-I can get sleep and recover my strength
-and others, etc...

We serve great big God!

Monday, March 06, 2006

Hello World


I have gotten the call that I am getting a Liver transplant.

I use a wonderful journal program called MacJournal. So here is a plug for MacJournal.